Thursday, November 17, 2011

Good days and bad days

I guess if you ask anybody with a chronic illness they'd tell you the same thing: there are good days and bad days.  I'm getting used to telling people how I am in a particular day, even in a particular moment, because I know my condition can change suddenly.
I've been quite good this week, but, unfortunately, Paige set up shop and never left.  That means I am living with joint pain every minute of every day.  Sometimes it is debilitatingly severe, sometimes it is just a little tightness to remind me of its presence.  Usually, I feel a lot better after dance class, go figure.  On the other hand (ha!), I was trying to do my assignment this morning and I found that I could not type more than two or three paragraphs before having to take a break.  My poor finger just couldn't take it anymore.  Sometimes I even dread going to bed, because I know how terrible the pain in the morning will be.
And yet I remain optimistic.  So I have a chronic illness and I'm in the middle of a flare; it won't be forever and honestly, a lot of people have it harder than I do. I read a lot of encouraging stories online about people living with illnesses like this and they are not giving up.
And, if I were a religious person, I'd have said, "god has made this arrangement especially for me," because, guess what?  Mr. K also has SLE.  Yeah, I can't believe it either, but it's true.  It is rare for a Caucasian male to get it but for some reason he does.  He does not think anything of it but just shrugged and said, "lucky me."  Not only is Mr. K not giving up on me when I was depressed and crazy, I now know that he knows what I go through when I have an SLE flare.
Ok, I'll say it, Glory be to the Lord.

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